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Open AccessArticle

Transition-Age Young Adults with Cerebral Palsy: Level of Participation and the Influencing Factors

Rehabilitation Clinic, Children’s Clinical University Hospital, LV-1004 Riga, Latvia
Department of Doctoral Studies, Rīga Stradiņš University, LV-1007 Riga, Latvia
The Statistics Unit of Rīga Stradiņš University, LV-1046 Riga, Latvia
Department of Rehabilitation, Rīga Stradiņš University, LV-1067 Riga, Latvia
Author to whom correspondence should be addressed.
Medicina 2019, 55(11), 737;
Received: 23 August 2019 / Revised: 26 October 2019 / Accepted: 12 November 2019 / Published: 14 November 2019
Background and Objectives: The aim of this study was to identify the level of participation in the context of the developmental transition from adolescence to adult life for young adults with cerebral palsy (CP) and the factors that had an influence on participation. Materials and Methods: Eighty-one young adults (16–21 years old) with CP and with normal or slightly decreased cognitive function participated in this study. Assessments were made using the Rotterdam Transition Profile (RTP) and the WHO Disability Assessment Schedule 2.0 (WHODAS 2.0). In the binary regression model, levels of participation (RTP scores) were set as dependents and the level of disability (WHODAS 2.0 scores), age, and level of gross motor function were set as independent variables. Results: In the age group <18 years, in three out of seven RTP domains, less than 10% of participants were in phase 2 (experimenting and orientating toward the future), i.e., finance—7%, housing—7%, sexuality—4%. In the age group ≥18 years, 21% (education and employment), 56% (intimate relationships), and 59% (sexuality) of the participants were in phase 0 (no experience). Higher scores in WHODAS 2.0 domains showed positive associations with RTP domains, i.e., cognition with social activities, mobility with transportation, self-care with sexuality and transportation, and life activities with transportation. Age was positively associated with education and employment, finance, housing, and sexuality. Low motor function according to the Gross Motor Function Classification System (GMFCS) had negative associations with autonomy in social activities, sexuality, and transportation. Conclusions: Young adults with cerebral palsy showed low levels of autonomy in all domains of participation. When addressing a person’s improvement in terms of their participation, the promotion of abilities in cognition, mobility, self-care, and life activities should be attempted. Age and gross motor function influenced autonomy in participation, but not in all domains. View Full-Text
Keywords: cerebral palsy; developmental transition; participation; disability; young adults cerebral palsy; developmental transition; participation; disability; young adults
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Rožkalne, Z.; Mukāns, M.; Vētra, A. Transition-Age Young Adults with Cerebral Palsy: Level of Participation and the Influencing Factors. Medicina 2019, 55, 737.

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