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J. Sens. Actuator Netw. 2018, 7(1), 14; https://doi.org/10.3390/jsan7010014

An Interface for IoT: Feeding Back Health-Related Data to Parkinson’s Disease Patients

1
Informatics, Business School, Örebro University, 70281 Örebro, Sweden
2
Department of Computer Science and Media Technology, Linnaeus University, 35195 Växjö, Sweden
*
Author to whom correspondence should be addressed.
Received: 25 January 2018 / Revised: 2 March 2018 / Accepted: 9 March 2018 / Published: 12 March 2018
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Abstract

This paper presents a user-centered design (UCD) process of an interface for Parkinson’s disease (PD) patients for helping them to better manage their symptoms. The interface is designed to visualize symptom and medication information, collected by an Internet of Things (IoT)-based system, which will consist of a smartphone, electronic dosing device, wrist sensor and a bed sensor. In our work, the focus is on measuring data related to some of the main health-related quality of life aspects such as motor function, sleep, medication compliance, meal intake timing in relation to medication intake, and physical exercise. A mock-up demonstrator for the interface was developed using UCD methodology in collaboration with PD patients. The research work was performed as an iterative design and evaluation process based on interviews and observations with 11 PD patients. Additional usability evaluations were conducted with three information visualization experts. Contributions include a list of requirements for the interface, results evaluating the performance of the patients when using the demonstrator during task-based evaluation sessions as well as opinions of the experts. The list of requirements included ability of the patients to track an ideal day, so they could repeat certain activities in the future as well as determine how the scores are related to each other. The patients found the visualizations as clear and easy to understand and could successfully perform the tasks. The evaluation with experts showed that the visualizations are in line with the current standards and guidelines for the intended group of users. In conclusion, the results from this work indicate that the proposed system can be considered as a tool for assisting patients in better management of the disease by giving them insights on their own aggregated symptom and medication information. However, the actual effects of providing such feedback to patients on their health-related quality of life should be investigated in a clinical trial. View Full-Text
Keywords: information visualization; user-centered design; internet of things; sensor technology; Parkinson’s disease; patient empowerment; quality of life information visualization; user-centered design; internet of things; sensor technology; Parkinson’s disease; patient empowerment; quality of life
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This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (CC BY 4.0).
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Memedi, M.; Tshering, G.; Fogelberg, M.; Jusufi, I.; Kolkowska, E.; Klein, G. An Interface for IoT: Feeding Back Health-Related Data to Parkinson’s Disease Patients. J. Sens. Actuator Netw. 2018, 7, 14.

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