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Laws 2016, 5(3), 36; doi:10.3390/laws5030036

Precision Medicine and Advancing Genetic Technologies—Disability and Human Rights Perspectives

1
School of Law & Government, Dublin City University, Glasnevin, Dublin 9, Ireland
2
Burton Blatt Institute, Syracuse University, 900 Crouse- Hinds Hall, Suite 300, Syracuse, NY 13244-6070, USA
*
Authors to whom correspondence should be addressed.
Academic Editor: Maya Sabatello
Received: 30 March 2016 / Revised: 19 July 2016 / Accepted: 10 August 2016 / Published: 30 August 2016
(This article belongs to the Special Issue Precision Medicine, Law & Disability)
View Full-Text   |   Download PDF [263 KB, uploaded 31 August 2016]

Abstract

Scientific and technological developments are propelling genetics and genetic technologies into the public sphere. Scientific and technological innovation is becoming more refined, resulting in an increase in the availability and use of genetic testing, and other cutting edge genetic technologies, including gene editing. These genetic advances not only signal a growing trend towards precision medicine, but also provoke consideration of the protection of genetic information as an emerging human rights concern. Particular ethical and legal issues arise from a disability perspective, including the potential for discrimination and privacy violations. In consideration of the intersection of genetics and disability, this article highlights the significant concerns raised as genetic science and technology advances, and the consequences for disability rights, particularly the core concepts of non-discrimination, and respect for diversity and difference. On examining international human rights perspectives, it looks particularly at the UN Convention on the Rights of Persons with Disabilities and how it may be used to guide best practice in this area. With an acknowledgement of historical abuses of genetic science, this article highlights the need to maintain caution as to the potential consequences of advancing genetic technologies on persons with disabilities and indeed on society as a whole. View Full-Text
Keywords: genetics; new technologies; disability; law; human rights; regulation genetics; new technologies; disability; law; human rights; regulation
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (CC BY 4.0).

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de Paor, A.; Blanck, P. Precision Medicine and Advancing Genetic Technologies—Disability and Human Rights Perspectives. Laws 2016, 5, 36.

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