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Int. J. Environ. Res. Public Health 2016, 13(5), 515; doi:10.3390/ijerph13050515

A Case Study of Community Involvement Influence on Policy Decisions: Victories of a Community-Based Participatory Research Partnership

1
Department of Public Health Sciences, Medical University of South Carolina (MUSC), 135 Cannon Street, Charleston, SC 29425, USA
2
The Brotherhood/Sister Sol (Bro/Sis), 512 West 143rd Street, New York, NY 10031, USA
3
Environmental Justice Action Group (EJAG) of Western NY, Buffalo, NY 14203, USA
4
Primary Care Research Institute, University at Buffalo, UB Gateway Building, 77 Goodell St, Suite 220, Buffalo, NY 14203, USA
*
Author to whom correspondence should be addressed.
Academic Editor: Devon Payne-Sturges
Received: 8 December 2015 / Revised: 6 May 2016 / Accepted: 13 May 2016 / Published: 20 May 2016
View Full-Text   |   Download PDF [872 KB, uploaded 20 May 2016]   |  

Abstract

The Buffalo Lupus Project was a community-university partnership that investigated associations between exposure to a local waste site and high rates of lupus and other autoimmune diseases. The partnership’s major accomplishment was successful advocacy for containment and clean-up of the site. As a result of community education, the remediation plan suggested by the community was adopted. Additionally, when a local childhood lead poisoning testing program was canceled, community members signed a letter to legislators urging them to replace the funding, which was restored within one week. This demonstrated how coordinated community-based capacity-building efforts can influence health policy. View Full-Text
Keywords: Lupus; Superfund; community-based participatory research; health policy Lupus; Superfund; community-based participatory research; health policy
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (CC BY 4.0).

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MDPI and ACS Style

Williams, E.M.; Terrell, J.; Anderson, J.; Tumiel-Berhalter, L. A Case Study of Community Involvement Influence on Policy Decisions: Victories of a Community-Based Participatory Research Partnership. Int. J. Environ. Res. Public Health 2016, 13, 515.

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