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Int. J. Environ. Res. Public Health 2015, 12(5), 5304-5309; doi:10.3390/ijerph120505304

Principles Relevant to Health Research among Indigenous Communities

Environmental Health, School of the Environment, Flinders University, Adelaide, SA 5001, Australia
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Academic Editor: Paul B. Tchounwou
Received: 28 April 2015 / Revised: 13 May 2015 / Accepted: 15 May 2015 / Published: 19 May 2015
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Abstract

Research within Indigenous communities has been criticised for lacking community engagement, for being exploitative, and for poorly explaining the processes of research. To address these concerns, and to ensure ‘best practice’, Jamieson, et al. (2012) recently published a summary of principles outlined by the NHMRC (2003) in “one short, accessible document”. Here we expand on Jamieson et al.’s paper, which while commendable, lacks emphasis on the contribution that communities themselves can make to the research process and how culturally appropriate engagement, can allow this contribution to be assured, specifically with respect to engagement with remote communities. Engagement started before the research proposal is put forward, and continued after the research is completed, has integrity. We emphasise the value of narratives, of understanding cultural and customary behaviours and leadership, the importance of cultural legitimacy, and of the need for time, not just to allow for delays, but to ensure genuine participatory engagement from all members of the community. We also challenge researchers to consider the outcomes of their research, on the basis that increasing clinical evidence does not always result in better outcomes for the community involved. View Full-Text
Keywords: health research; engagement; community; Indigenous health research; engagement; community; Indigenous
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (CC BY 4.0).

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MDPI and ACS Style

O'Donahoo, F.J.; Ross, K.E. Principles Relevant to Health Research among Indigenous Communities. Int. J. Environ. Res. Public Health 2015, 12, 5304-5309.

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